Wednesday, December 15, 2010

The beginning

I was young very young for someone to handle the news I recieved that day.  Even was a bit much for my parents and siblings.  I cried, my mom cried all the way home from the dr.  My mom took my dad aside and told him what the dr. had said.  Now he cried and it hurt to see both my parents cry and to hear my siblings ask what was going on.  My mom and dad sat them down and started to explain.  

I had been sick all my life so much so my parents would say I was a hypercondriact. That day we all wish that had been true.  Infact it would of been so much easier for that to be so than what we had to deal with and are still dealing with.

So, let me go back a bit further maybe a month or so more.  I had been fainiting passing out at anytime anywhee and no one knew why.  My parents decided to have me checked out since this was keeping me from going any where.  They made the appointment with the peditrician.  The day came we went at the appointment time.  The Dr. looked at me and told my mom she does not look good but I don't know what is going on. He said he wanted to run a lot of tests.  

We started the test right away and it ran me through the mill.  Preps for some of them were horrid tasting some was just what I could eat at home like bacon and greasy foods.  One day after a test, my dr said he would like me to meet another doctor.   We had the meeting that day.  Dr. Haygood met with my mom and I after they took blood test (btw at that time I was petrified of needles so it took a bit before they could get the needle near me)   He explained that my kidneys were failing.  My first thought was I was dying and I panicked inside.  Imagine being 14 years old and being told this.  Dr. Haygood reasured me that I would not die but if it had been 14 years earlier they would of told my parents to start to make arrangements for my passing.  He said my kidneys were working only 20% and that they needed to keep an eye on me each week I would have to have blood work taken.  Eventually I would go on a dialysis and maybe a canidate for a transplant.

My parents explained this all to my brothers and sister that day.   A lot of crying was done and the blame my parents took that day.  What did they do wrong that this would happen to me.  Did they do something wrong while my mom was pregnant.  So many questions went through of why when how.  I was born with this it was at that time a rare childhood disease.  You know my parents did nothing wrong and I knew that even then.  Then the guilt of them all calling me a hypercondriact.  That was not their fault either none of them could have known what was gong on.  I was lucky to have a Doctor that knew there was something wrong and that test were in order.   

This is just the begining of the story I will be writng more about all of this that has happend through out my life the good the bad the scared the anger.